HCCA's 27th Annual Compliance Institute: It’s De-identified, or Is It?

Speaking Engagement | April.25.2023 | 12:30pm - 1:30pm (Pacific Standard Time)

Anaheim Convention Center, Anaheim, CA, USA

Thora Johnson will lead an “It’s De-identified, or Is It?,” panel discussion at the 27th Annual Compliance Institute hosted by the Health Care Compliance Association (HCCA). Thora and her fellow panelist, the Privacy and Research Compliance Officer at the American College of Cardiology, will explore the HIPAA Safe Harbor and Expert Determination Methods of De-identification as well as compare and contrast HIPAA De-Identification with Anonymization/ Pseudonymization under GDPR. They will also discuss the evolving technologies and methodologies used to match disparate data sets.

HCCA’s Compliance Institute has been the primary educational and networking event for healthcare compliance professionals across the country, offering attendees the latest in real‑world compliance issues, emerging trends, and practical applications.

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Contacts

Thora Johnson Partner, Life Sciences & HealthTech, Cyber, Privacy & Data Innovation

Washington, D.C.

See my bio

Practice:

Technology & Innovation Sector
Life Sciences & HealthTech
Cyber, Privacy & Data Innovation
Strategic Advisory & Government Enforcement (SAGE)

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Thora Johnson Partner

Washington, D.C.

Thora works with medical device, pharmaceutical, biotech and digital health companies, helping them navigate the increasingly complex patchwork of state and federal health privacy laws. One client described her to the Legal 500 as a “very practical” advisor providing “exceptional guidance” on health information privacy and HIPAA compliance matters.

Her breadth and depth of experience enable Thora to assist clients in harnessing the power of artificial intelligence and executing data-sharing arrangements, all while protecting health data. As a result, Thora spends much of her time counseling pioneering startups and high-growth companies on responsible innovation in healthcare and life sciences.

Thora brings extensive experience counseling clients, including Fortune 500 companies and brick and mortar providers, on the Health Insurance Portability and Accountability Act (HIPAA) and other state and federal health privacy and regulatory compliance regimes including:

Office of the National Coordinator for Health Information Technology’s interoperability and information blocking regulations
Centers for Medicare & Medicaid Service’s (CMS’s) interoperability and patient access regulations
Part 2 confidentiality requirements applicable to substance abuse records
State health information privacy laws
State consumer privacy laws with special controls for health data
Medicare/Medicaid compliance
Mental Health Parity and Addiction Equity Act (MHPAEA)
Genetic Information Nondiscrimination Act (GINA)
Affordable Care Act (ACA) compliance
Regulatory requirements of the Employer Retirement Income Security Act (ERISA), the Internal Revenue Code, HIPAA, and the ACA as they apply to employer health and wellness plans

Thora routinely helps companies and large employers prepare for and respond to privacy and security incidents involving health information. She also defends clients in government investigations initiated by the OCR, OIG, DOJ, FTC and State AGs, among others.